If Your Child Has Fetal Alcohol Spectrum Disorder

By Sarah Horton Bobo, Bethany’s Director of Post Adoption Support and Education

The Substance Abuse and Mental Health Association’s Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence explains in its factsheet on adopting and fostering children with FASD, “Parenting has been called the toughest but most fulfilling job in the world.  Parenting children with special needs, such as fetal alcohol spectrum disorders (FASD), brings its own set of challenges.”

Many parents of children with an FASD are adoptive or foster parents.  Some knew about FASD when they welcomed their children into their family, while others did not.  In any case, information is the key to success in raising children with an FASD.

Learning about FASD can help parents understand how their children are affected, which parenting strategies work best, and how to get services and support.

However, getting accurate information about FASD can be challenging.  The information you find can be:

  • Overwhelming.
  • Depressing.
  • Incorrect.
  • Outdated.
  • Helpful.
  • Hopeful.

Or all of the above….  All resources are provided for your convenience. Including them here does not imply an endorsement from Bethany Christian Services for any particular organization, website, or individual. We have no control over or responsibility for the accuracy or relevance of their information.

 for general information

 

  • National Organization on Fetal Alcohol Syndrome (NOFAS)
    • www.nofas.org
    • Provides information, resources, educational materials, and support
  • FASD Center of Excellence
    • www.fasdcenter.samhsa.gov/
    • Provides information, resources, educational materials, training curriculum, and access to technical assistance

 for scientific and medical information on FASD

 

 for parenting children with FASD

 

  • Let’s Talk FASD
    • www.von.ca/fasd/
    • Parent-driven best practice guidelines on parenting children and adults with an FASD
  • FASD Strategies not Solutions

 for addressing FASD in the education system

 

 

 

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